Every five years for nearly three decades, Rep. Chris Smith (R-Manchester) has successfully led efforts in Congress to pass a new version of his extensive bill aimed at authorizing and reauthorizing vital federal programs dedicated to autism education and research. Today, in a significant stride forward for the autism community, the House passed the latest version: the Autism CARES Act of 2024.
This critical legislation, if signed into law, will allocate a substantial $1.95 billion for various autism programs through the National Institutes of Health, the Centers for Disease Control and Prevention, and the Health Resources and Services Administration. This funding will ensure the continuation of these essential programs through 2029. The bill enjoyed overwhelming support, passing with a remarkable vote of 402-13. Notably, all New Jersey representatives, except Rep. Mikie Sherrill, who was not present for the vote, supported the bill.
“The Autism CARES Act is a comprehensive reauthorization, and a strengthening of the whole-of-government effort that we have been working on now for three decades,” Smith emphasized during his remarks on the House floor. This statement encapsulates the collective vision and dedication behind the Autism CARES Act, underscoring its importance in addressing the challenges faced by individuals with autism and their families.
Smith’s commitment to this cause dates back to 2000 when he introduced the first version of the Autism CARES Act. This initiative was inspired by a poignant meeting with the parents of autistic children in his district. They brought to his attention the pressing need for increased federal action and funding for autism research and support. “About 30 years ago, Bobby and Billy Gallagher, the parents of two children with autism who were babies at the time, came into my office in Whiting, New Jersey and said, ‘We need to do something – nothing’s really being done,’” Smith recounted in his address to the House.
This conversation was a turning point for Smith, who learned that the CDC was allocating a mere $287,000 a year for its entire autism program, a shocking figure that highlighted the urgent need for change. In response, Smith took action. “I introduced legislation, and the Energy and Commerce Committee incorporated it into the Childrens’ Health Act,” he continued. This marked the beginning of a concerted effort to elevate the focus on autism and ensure that adequate resources are allocated to support individuals with autism and their families.
The Autism CARES Act stands as a testament to the progress made over the years and the continuous advocacy required to improve the lives of those affected by autism. As the bill moves forward, it reinforces a promise to foster a more inclusive society, providing necessary funding and resources to mitigate the impacts of autism spectrum disorder. Smith’s determination, fueled by personal stories and grassroots advocacy, has significantly shaped the landscape of autism research and support in the United States, and the Autism CARES Act of 2024 is a crucial step in sustaining this momentum for years to come.
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